WASHINGTON (AP) — More than 1 million Americans wind up back in the hospital only weeks after they left for reasons that could have been prevented — a revolving door that for years has seemed impossible to slow.
Now Medicare has begun punishing hospitals with hefty fines if they have too many readmissions, and a top official says signs of improvement are beginning to emerge.
"We're at a very promising moment," Medicare deputy administrator Jonathan Blum told The Associated Press.
Nearly 1 in 5 Medicare patients is hospitalized again within a month of going home, and many of those return trips could have been avoided. But readmissions can happen at any age, not just with the over-65 crowd who are counted most closely.
Where you live makes a difference, according to new research that shows how much room for improvement there really is. In parts of Utah, your chances of being rehospitalized are much lower than in areas of New York or New Jersey, says a report being released this week from the Dartmouth Atlas of Health Care.
The AP teamed with the Robert Wood Johnson Foundation to explore, through the eyes of patients, the myriad roadblocks to recovery that make it so difficult to trim unneeded readmissions.
The hurdles start as patients walk out the door.
"Scared to go home," is what Eric Davis, 51, remembers most as he left a Washington hospital, newly diagnosed with a dangerous lung disease. His instructions: stop smoking. He didn't know how to use his inhaler or if it was safe to exercise, until a second hospitalization weeks later.
There is no single solution. But what's clear is that hospitals will have to reach well outside their own walls if they're to make a dent in readmissions.
Otherwise a slew of at-home difficulties — confusion about what pills to take, no ride to the drugstore to fill prescriptions, not being able to get a post-hospital check-up in time to spot complications — will keep sending people back.
"This is a team sport," says readmissions expert Dr. Eric Coleman of the University of Colorado in Denver. It requires "true community-wide engagement."
Pushed by those Medicare penalties, hospitals are getting the message.
"It's made hospitals go, 'Oh my gosh, just because they're outside my door doesn't mean I'm done,'" said nurse practitioner Jayne Mitchell of Oregon Health & Science University, who heads a new program to reduce readmissions of patients with heart failure.
In a pilot test, her hospital is sending special telemedicine monitors home with certain high-risk patients so that nurses can make a quick daily check of how these patients are faring in that first critical month.
Too often, families don't realize that many readmissions can be prevented.
In Fort Washington, Md., Reggie Stokes started asking questions after his 84-year-old stepmother was hospitalized four times in a row, for transfusions to treat a rare blood disorder. He found a specialist in another city who said a bigger dose of a common medication is all she needs.
The hospital "could have helped her and saved money" by doing that legwork, Stokes said. His advice: "You have got to go out and do research for yourself."
That's hard when you're feeling ill, said Lincoln Carter, 50, of New York, who didn't think his pneumonia was under control when the hospital discharged him.
But, Carter said, "I didn't even really know the questions to ask." Nor could he get to his regular doctor's office. When "you can't breathe, the last thing you want to do is sit on the subway." A few days later, he was back in the hospital.
Patients don't have to be powerless, and the Robert Wood Johnson Foundation this week begins an effort called "Care About Your Care," which offers consumers tips to guard against unnecessary readmissions.
"Everyone has to understand their role in improving the quality of care, including families," said Dr. Risa Lavizzo-Mourey, the foundation's president. "This could be a time when we turn the corner."
Rehospitalizations are miserable for patients, and a huge cost — more than $17 billion a year in avoidable Medicare bills alone — for a nation struggling with the price of health care.
Make no mistake, not all readmissions are preventable. But many are, if patients are given the right information and outpatient support.